Tuesday, April 15, 2008
More about the book...
I have really starting thinking about ideas for the book and pieces here and there. I wish that I had some voice recognition so that I would be able to walk and talk to myself because I have been bursting with ideas, but I am missing the time and opportunity to sit down and get started. Oh well, no time like the present. To be honest, I am also looking for a distraction in my life. I have recently experienced a loss that I cannot go to in this forum. It has come to my mind that while I cannot pour my soul out on *that* topic, I hope that I can experience the cartharsis that only writing seems to offer me.
First... while the book may talk about the diagnosis of my tumor, the surgery, and the recovery, I want the central focus to be that while I look well, I do not feel well. I have yet to read an account of a brain tumor survivor that can successfully convey what it FEELS like to have a large portion of your brain removed.
I don't think that I could have explained it a year or two ago. However, the facts of my life after surgery have forced me to repeatedly advocate for and explain myself to my medical care providers and the work force. This task has turned my vision and my perception of things into a muscle that has gotten much exercise and I feel my mind is ready to take on this task.
If you are reading this far and are interested in what I would like to say, something that would help me in the writing would be for you to ask me questions that you might have if you were facing such a life changing surgery.
First... while the book may talk about the diagnosis of my tumor, the surgery, and the recovery, I want the central focus to be that while I look well, I do not feel well. I have yet to read an account of a brain tumor survivor that can successfully convey what it FEELS like to have a large portion of your brain removed.
I don't think that I could have explained it a year or two ago. However, the facts of my life after surgery have forced me to repeatedly advocate for and explain myself to my medical care providers and the work force. This task has turned my vision and my perception of things into a muscle that has gotten much exercise and I feel my mind is ready to take on this task.
If you are reading this far and are interested in what I would like to say, something that would help me in the writing would be for you to ask me questions that you might have if you were facing such a life changing surgery.
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